Yesterday I went to the CFS clinic. I've had joint problems since I was about 12. I was finally diagnosed with M.E. when I was 19. Bouts of exhaustion and pretty much constant pain has been my life. It's not *that* much of a big deal in the grand scheme of things for me. For some people, M.E. is so life limiting it is the stuff of nightmares. One of my friends has a teenage daughter who is so crippled with it, she is tube fed and barely wakes for an hour a day.
For me it has always been about the pain. Most people wouldn't know. I'm quite a loud person. I prance around. I dance whenever I can. I do too much. I don't *look* like someone who is in pain. But that's the thing about invisible conditions. You quite often can't tell. Which makes it hard for people to understand.Read More